Where are all the females with Autism or Aspergers hiding? Life As a Chameleon Part I

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In my two Gold medal award-winning books, I Am AspienGirl and I am AspienWoman, I discuss the female phenotype and how it presents differently from males. One of the areas I have been able to research and ask of my clients is, “how have you managed to hide your Autism all this time?” Other questions I ask them include:

I have worked with clients for over 20 years who have told me how they hide or not hide their Autism. Some autistic individuals can and some cannot or do not choose too. These behaviors are referred to as masking, camouflaging, assimilation, compensation, coping strategies, passing for normal, pretending to be normal or being a chameleon. In order to assist with females and males obtaining an assessment or diagnosis, I am pre-releasing a part of my book to assist professionals in recognizing Autistic females and males by asking the right questions.

The Compensatory mechanisms used by some Autistic people I have met and listened to are complex, even going so far as to use one behavior to cover up another. These questions and behaviors come directly from my professional experience as a psychologist working with individuals with Autism, Giftedness and Social Anxiety. Thank you to all my clients for sharing your stories with me.

The Compensatory Measures Checklist©, Marshall 2017, excerpt from my from my upcoming book. 

Do you feel different than your peers? When was the first time you ever felt different?

What exactly makes you feel different from your peers?

What is your experience of social interactions with your peers like?

Do you copy or mimic your peers (copy their voice or accent, words, and language or slang, hand and/or body gestures). Do you laugh when they laugh even when you don’t understand why you are laughing?

Do you take on a persona of always smiling and pleasing everybody?

Do you make better versions of yourself that based on peers in school, over time? How do you do that?

Have you ever read books on etiquette, social skills, facial expressions, microexpressions? Have you practiced them in front of a mirror? Have you practiced making more or less of a facial expression? In particular, have you purposefully changed you smile or facial expression to look “more normal”? Have you studied anatomy books, in particular, the facial muscle that matches with each facial expression (for example, knowing that a certain muscle is used in smiling and practicing using that muscle?

Have you ever used Botox or a similar cosmetic ingredient to make your face appear more natural, less angry or furrowed/worried?

Do you watch YouTube videos on social skills, self-improvement, and human etiquette in order to fit in?

Has a peer ever make a comment about your gait or other forms of behavior? If so, did you actively practice a behavior until you were able to make it look like your peers do when they behave that way? (for example, being told he/she had a ‘funny’ run and then purposefully practicing the running over and over again until it was perfect).

Have you watched movies to learn how to act with your peers? (for e.g, learn that you need to have a big smile and say hello to everyone because that is how people will like you).

Do you force yourself to make eye contact, look somewhere else on a persons face, look at their mouth or look at them for too long? Do you find yourself staring at people?

Do you hide some body language or facial expressions to fit in? (for e.g., sitting on your hands, twirling your hair instead of stimming or cracking your knuckles)

Do you spend the majority of your time thinking about what to say, how to act or behave, and/or analyzing social situations? Do you analyze what you could or should have said in a prior or past social situation?

Do you pretend to be shy and quiet and therefore avoid the “social drama” of having to navigate the social world of your peers?

Do you have a permanent smile on your face even though you are miserable inside?

Do others say you look angry when you feel happy or another emotion inside?

Have you or do you taken.take on the persona of a book, television, movie character or a celebrity?

Do you attend social situations, but don’t really want to (saying you will go to a party to get in with the “cool kids”). Do you do their homework for them to fit in? Do you do the groups work for the group to gaon social equity?

Do you write in your journal what you think you should say or do or not say or not do and practice them over and over, so you can use them in school? Do you have a list of sayings, slang, words from songs, movies or social media that you use to be “cool” or try to fit in?

Have you developed a special interest that is not yours but simply to “fit in” but you actually found that interest boring (for e.g, pretending to be in love with a certain pop star but you couldn’t care less about them)?

Do you participate in social events, parties, clubs that you do not want to in order to gain social currency? Do you use the skills you have learned from YouTube, social media, books, movies when you are at these social events? Do you find that you have to begrudgingly attend these events?

Do you use alcohol or drugs as a social lubricant? Does the use of drugs or alcohol allow you to be more social and/or have less anxiety?

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Do you utilize social media (Instagram, Twitter, Snapchat, Facebook, Reddit) to learn social nuances, how to interact socially, or how to hide your social awkwardness?

Do you act in varying ways depending on the social situation that you are in? Do others comment on or notice that you act differently depending on who you are with, the social context or environment?

Do you pretend to like the interests of whomever you are with at the time, however you know inwardly that you don’t like them? Do you make yourself look like you are interested in what your peers are saying, doing, how they are behaving, interested in their interests?

Have you ever had a girlfriend/boyfriend that you inwardly said to yourself, “Why am I with this person? I don’t even like them”.

Do you find yourself involved in friendships and/or relationships and wonder in your head why you are with them because you don’t really like them?

Do you feel there are times when you can be yourself? Do you feel you always have to be “someone else” to be in this world?

Is your headspace mostly filled with continual thoughts about what you should do next, do better, who to pretend to be like?

Do you have a habit of giving gifts to make and keep friends?

Has your family or another person supported you with social skills (enrolled you in drama, etiquette or social skills classes or a modeling school to learn deportment)?

How long can you socialize for before feeling tired?

Are there times where you actively find excuses not to attend events, parties, assembly at school, group activities? Do you often say “yes” to a social event and then make up a last-minute excuse as to why you cannot attend?

Do you purposefully go to the library, become a prefect, girl scout leader, homecoming queen, cheerleader, debate team leader (so you can give the directions or debate rather than socialize)?. Do you try to become the teacher’s helper at lunchtimes, hide in the bathroom, walk the hallways alone, join lunchtime clubs, wag school, so that you do not have to socialize with your peers?

Do you or are you reading or studying psychology, sociology, taking microexpressions and facial recognition training to learn to better yourself in terms of understanding people and socializing. Do you read social skills books, watch social skills training on YouTube or another social media platform?

Have you learned from your studies and them practiced how to ask people questions, listening skills and/or other social skills?

Are you overly aware of other people looking at you or pacing attention on you? Do you dislike attention? Do you feel like you spend the majority of your mental and physical energy on how you interact with others?

Do you feel like an ‘imposter’ in social situations?

To be continued in Part 2 and many more examples coming 

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I Am AspienGirl

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I Am AspienWoman

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The Compensatory Measures Checklist©, Marshall 2017, excerpt from my from my upcoming book. Thank you.

Copyright© Tania A. Marshall, www,aspiengirl.com, http://www.taniamarshall.com

 

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Just in! Videos: FAQ style, Educational, Instructional, Interviews and more.

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Just in! Videos, FAQ’s style and more

Tania has been requested multiple times to share her work over her lengthy career, give her opinion or support a person or organization. She is now sharing her work via Video FAQ’s or videos, from various individuals or organizations and conferences including the Secret Agent Society, Different Brains, Asperger Argentina’s first and second Symposium and conference on females on the Autism Spectrum, and Asperger Sevilla’s (Spain) recent Innagural Women on the Spectrum Conference and others. These videos can be found on YouTube at https://www.youtube.com/channel/UCk_kFdaPkv4w0ieOgfR3IvA

If you like a video or feel it would help someone, please share the video, like the video, subscribe to Tania’s channel and hit the bell to be notified when the next video is coming out. You can leave your FAQ in the comments section below and Tania will read and select a question to answer in the future. Tania will answer the video and it will be uploaded to YouTube. Click on a picture below and you will be taken to her YouTube page, where you can learn more from FAQ’s, conference, interviews and more.

Tania also has her videos on Vimeo at https://vimeo.com/neurodiversityacademy

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More Videos coming here soon. Don’t forget if you have an FAQ, leave it in the comments section here or better yet on YouTube and you may see your question being answered by Tania in the future. And always remember to ‘Be Your Own Superhero’.

To contact Tania for in-person or Skype/Zoom fee-based impressions assessments, consultations, interviews, translations, problem-solving sessions and more, please email tania@aspiengirl.com

AspienGirl©

The queen of self-deprecation

This is a recent FAQ on self-deprecation in neurodiverse females. As always, If you like it please share and leave your positive comments or other questions below. This video was made by the Neurodiversity Academy, founded by and funded by AspienGirl girl.com

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The Female Autism Crisis: Assessment and Diagnosis of the Neurodiverse

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Updated February 18th, 2017

This is a sample of the book entitled Behind The Mask and is therefore under copyright law. Behind The Mask give voice to neurodiverse females and discusses the assessment diagnosis and support of females on the Spectrum.

Tania Marshall, M.Sc. is available for diagnostic impressions reports, assessment, diagnosis and intervention, support and problem-solving sessions in-person and/or via Skype. All queries, please email admin@centreforautism.com.au

I chose to write my book series after numerous requests for information on the topic. I also chose to self-publish, so that I can regularly update my work, keep my work current with the speed and amount of the research in the area (a challenge to keep up with for a professionals in the area), keeping my work fresh, current and in real time, rather than a long waiting period and being out-dated.

Over my career, I have I worked with hundreds of neurodiverse, Gifted and Talented, and 2e individuals.They may have labels that consist of Autism, Aspergers, Non-Verbal Learning Disability, Twice-Exceptionality, Semantic-Pragmatic Language Disorder, Oppositional Defiant Disorder, Anxiety Disorder, Bi-Polar Disorder, and many more. Irregardless of the ‘label’, these individuals have many significant strengths, gifts, abilites and/or talents, and this topic is discussed in ‘ AspienPowers’.

In working with neurodiverse individual across the lifespan, I have written and spoken about and or refer the ‘female autism crisis’. There are many factors involved, some of which include:  a lack of professionals trained in the area, gender differences, the female autism bias and the lack of assessment tools.  We are a long way from developing efficient tools for assessing neurodiverse girls and woman. The following slide is from the Recent presentation review of key measures, gender and autism at the 2016 XI Autism-Europe International Congress and shows that the ADOS/ADOS-2, the ADI-R and the SCQ favor males. This is a real problem and a crisis because these are the very tools that many professionals use when they assess females. They are sometimes a cause of females flying under the radar of a professional.

I have been referred many females who have had these tools previously completed on them and have not been given a diagnosis. This can be due to the tools inability to measure the subtle signs, client masking, compensatory mechanisms and strategies and/or the even the rigidness of the professional in using the tool or the over-reliance of using these tools versus asking the right questions and looking for the subtle signs in body language, facial expressions, asking the right social questions, evaluating areas such as context blindness, synaesthesia, Irlen Syndrome, sensory processing issues, and more.

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In assessing girls on the Spectrum, it is important to ask the right questions. I cannot emphasise this enough. There are many questions to ask and what follows are some examples. Keep in mind that high average to profoundly intelligent girls can tell you the socially acceptable answers that you as a professional want to hear, but they are unable to actually perform those unwritten social rules or if they can, they are not as fast at it as their peers or it comes off as just slightly awkward. You need to look at this subtle non-verbal signs which I will be discussing In an educational series.

Many girls and women with Asperger Syndrome or Autism have a tendency to be over-loyal and over-trusting, have a lot of emotional empathy, often just ‘seeing’ that a person needs help or saying they person needs help and taking things literally or not being able to ‘see’ the social context of a situation (for example, bringing home a homeless man because he has no home or food, yet not seeing the inherent dangers in doing this).

  1. What is bullying? What is teasing? What is bitchiness? How do you know the differences? When should you help someone? When shouldn’t you help someone?
  2. Sample questions in the area of friendship friendship should consist of: What is a good friend? What are some healthy ways of making and keeping friends? How long does it take to make and keep a best friend? Who are your friends? How do you know they are your friends? Do your friends try to get you to do things you dont feel is the right thing or that you feel uncomfortable with? (For example, do they try to get you to do your their homework, reports school work? Do they get you to buy things for them? Do they try to get you into trouble (for example, do they say they’ll be your friend if you do something for them?) What do you do at lunchtime? What do you do with your friends? What kinds of activities do you do with your friends? Do you prefer one best friend or a few friends? How long have you known your friend/friends for? Do they come stay over at you house and vice versa (if applicable). What do you talk about with your friend(s)? Professional Tip: Try to find out if the conversations are more one-sided or are they reciprocal, that is the conversation takes turns; it is a two way street rather than just a one person conversation involving 2 or more people.
  3. Sample Questions of play or hanging out may involve: How often do you play it hang our with your best friend/friends? Who initiates the play? Do you ask your friends to come over? Do they ask you to come over? Professional Tip: Often girls will text or cling too much to a girl, often driving them away.
  4. Does the girl or teen understand the social hierarchy? Do they understand how groups in school work? Do they understand the role the group members play? Why do you think the girls at school engage in these behaviors?
  5. Why is it important to keep a promise? Should every promise be kept?
  6. Why is it important to apologize when you’ve hurt someone? Professional Tip: Some girls adamantly refuse to apologize and some girls over-apologize.
  7. How do you know if someone is trying to get you into trouble? How do you know who you can and cannot trust as a friend?
  8. How do you know a particular person is safe to have as a friend? What kinds of clues might alert you that this person is dangerous? How would you know you are being taken advantage of?
  9. What are boundaries? How do you enforce a boundary?
  10. Do you prefer one-on-one friendships or hanging out in a group?
  11. Do you feel anxious around other girls? Girls often internalize their anxiety and can hide it very well. For those girls that are unable to “hold it in”, they may receive a diagnosis earlier than other girls. Remember that is it common for girls to be unable to explain why they are having difficulty in a social situation. They do often discuss not feeling well or may speak of feeling sick, feeling nervous or scared. They may often be in the sick bay.
  12. How long can you socialize for? Do you feel like you need a break? Does socializing make you tired?
  13. Teenagers with Aspergers often have eating disorders, an escalation of anxiety and depression and/or self-harm. Asking these questions is important. Investigating self-harm is also important. Girls are very good at hiding their cutting. Demand Avoidance is commonly seen in girls and women with Aspergers. Avoiding demands is caused by anxiety and/or not knowing how to do the task at hand and /or being embarrassed or socially anxious about a task. This is context-dependent and can look like making up excuses as to why she cannot do something that you know she can do to refusal to do something asked of her to refusing to comply with requests by an adult to avoiding the social playground.
  14. Many girl and women have a flat affect on their face, so that family members or professionals cannot tell how they are feeling.
  15. Some girls and women have Alexythymia and/or Faceblindness. Most experience extreme emotions and some girls may receive a diagnosis earlier than others to their meltdowns and/or violence.
  16. Many, if not all girls and women mis-interpret social situations (for e.g., “none of the teachers or kids at school like me”). Upon further investigation/assessment, it is found out that the individual misinterpreted facial expressions and social context, in an assessment.
  17. An assessment should involve reading of the eyes to see how well an individual can read non-verbal facial expressions from the eyes.
  18. An assessment may include listening to a variety of different tones of voice to see if the individual can distinguish the underlying feeling behind the tone.
  19. An assessment should also investigate other senses (both sensory issues and emotional empathy or “empath” characteristics). These questions need to be asked in a certain way as many females are literal, so a careful exploration is essential. An investigation of synaesthesia may be warranted.
  20. An assessment should also explore social naivety, the differences between lying and ‘white lies’, ‘pink lies’, social diplomacy, social tact and theory of mind.
  21. For teens and women, how do you know when someone is flirting with you or wants to go on a date with you? Do you know how to diplomatically reject the advance of another person? Professional Tip: Assertiveness training is essential for many females.
  22. In relation to gender and sexuality, a smaller group of girls (and boys) feel confused by their gender, and this can range from mild to severe. A thorough exploration of this issue often finds the individual relating better to the opposite gender, with girls getting along better with boys, being androgynous and/or Tomboy-like, and boys seeing other females as very socially successful and appearing to have lots of friends. Sometimes, an individual in their search for why they are different or why the social aspect of their life are so much more work for them, then come to the conclusion, for a variety of reasons (the feeling that others do not like or accept them, they do not like themselves, always having that feeling of being “different” to their peers), that they may have been born in the wrong body (they may be able to have more friends or be liked more, feel more accepted, feel “better” inside their body, be happier within themselves and within their family, be socially better or more popular), if they change their gender or their sexuality. Rarely, does changing one’s gender or sexuality fix the underlying social communication and identity issues, including being bullied, ignored or excluded and/or self-esteem challenges. Depending on how rigid or black and white the person is in their thinking, this can be a challenging issue to work on with the person.
  23. An exploration of identity in teenagers and women is important. This is because, over time, an assimilation of other people’s characteristics traits, voices, accents, behaviors has occurred, in addition to what others and society expect of them and from them. This high price (masking) often leads to a complete loss of identity.
  24. Many professionals are not aware that females can and do make eye contact, do make superficial conversation for short periods of time, and can have friends.
  25. Many professionals are unaware of the variety of sub-type presentations of girls across the Spectrum, with the ‘princess’ or ‘supermodel’ type, and/or those with higher intelligence, being the ones to be least diagnosed or diagnosed at a much later age. They are often Twice-exceptional (2e) individuals and blend in very well.
  26. Strengths and abilities are often overlooked due to the “presenting problem(s)”. Once these are addressed, then can an individual’s true gifts (for example, perfect pitch, artistic creativity, acting, dancing, programming, languages, just to name a few) can be nurtured and evolve into careers.
  27. Individuals on the Spectrum can and do lie, just like anyone else does. They dont do it as well as their peers and the reasons for lying may be different
  28. In terms of friendships, females are able to make friends, however they can often have a challenging time keeping them.
  29. A females sense of justice and high moral compass can be a clue and some females have been known to take their enlarged justice glands too far in their causes.
  30. Females with social problems often use their intelligence (sometimes quite successfully) to compensate for their lack of social skills, often falling into leadership roles, caring roles, teaching roles, acting roles, lawyers, professors, amongst other, where social reciprocity is least expected and social scripts (and slides!) can be adhered too.

Briefly, what we need to be asking are the right questions, looking and searching for and asking about questions that have to do with social confusion, camouflaging (how are the hiding it?), compensatory mechanisms (strategies they use to attempt to fit in, hide their confusion), eating disorders, gender, sexuality (if appropriate) and identity issues.

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This is a sample chapter of ‘Behind The Mask’, and is therefore under copyright law. In Part I of this book, it  explores the narratives and themes of the neurodiverse female clients that Tania has worked with over the course of her 20-year career. Part II includes chapters on assessment, diagnosis, how to explain the diagnosis, what next and support and intervention. For more information on female neurodiversity, go to:

http://www.aspiengirl.com

http://www.taniamarshall.com

Copyright 2014-2017 © All rights reserved. Duplication in whole or part is explicitly forbidden. Thank you.

I Am AspienWoman wins a 2016 IPPY eLit Gold Medal Award!

The AspienGirl Project is pleased to announce that the sequel to ‘I am Aspiengirl’ entitled ‘I Am AspienWoman’ recently won a 2016 IPPY eLit Gold Medal Award in the “Women’s  Category” in April. I am AspienWoman is the culmination of a blog Tania wrote a couple of years ago entitled ‘Moving Towards a female profile of Asperger Syndrome’, with close to 300,000 views, to date. That blog is regularly updated. You may purchase copies at http://www.aspiengirl.com, Amazon or other fine books stores.

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2016 Award Announcements

Tania spends her professional time in private practice. She provides diagnostic assessment impressions reports regularly (across the lifespan), and provides interventions and support. For more information regarding diagnosis and assessment, bookstore wholesale discounts, book contracts, interviews, translations, workshops and conferences, please email admin@centreforautism.com.au

 

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Jekyll and Hyde or Pathological Demand Avoidance Syndrome (PDA)?

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Updated January 3rd, 2016. This post will be updated on an on-going basis

I have written this blog specifically to educate, advocate and provide awareness for an unknown syndrome in Australia, called Pathological Demand Avoidance (PDA) Syndrome.  Many children are misdiagnosed with other conditions and/or parents are sent on parenting courses that are ineffective or make things worse for these types of children.

Presently, Pathological Demand Avoidance (PDA) Syndrome is not recognized in Australia and is not recognized by the DSM5. It may be confused with intermittent explosive disorder, oppositional defiant disorder and other disorders or conditions. It is extremely challenging to find support or assistance for PDA in Australia. Many professionals are unaware of PDA. However, the National Autistic Society in the UK has recognized PDA as a form of Autism (http://www.autism.org.uk/about/what-is/pda.aspx#). This is a most progressive and positive move.

Over my career, I  have worked with some of the most behaviorally and emotionally disturbed children (and adults). I have worked with a number of children and adults (in two countries) who have been described by their family members, school officials, educational consultants, as “naughty”, “Jekyll and Hyde”, “bi-polar”, “schizophrenic”,”possessed” or even “a devil’s child”. I have worked in private special needs school, hospital psychiatric, outpatient and inpatient and private practice settings. In one professional development session I attended, a psychiatrist suggested “these children needed to be thrown out the window on the drive by past school” (in order to help them overcome their anxiety). I have seen and heard it it all, and I can tell you, these children do not need to be thrown out windows and are not possessed by any “devil”, although they can and do behave in some very scary ways, at times.

Presently Pathological Demand Avoidance (PDA) Syndrome is not recognized in Australia and is not recognized by the DSM5. It may be confused with intermittent explosive disorder, oppositional defiant disorder and other disorders or conditions. It is extremely challenging to find support or assistance for PDA in Australia. Many professionals are unaware of PDA. However, the National Autistic Society in the UK has recognized PDA as a form of Autism (http://www.autism.org.uk/about/what-is/pda.aspx#). This is a most progressive and positive move.

Pathological Demand Avoidance Syndrome (PDA) is a term by Elizabeth Newson, used to describe children and adults who have an extreme need for control that is led by high levels of anxiety. They have difficulty coping and complying with day to day activities and their behaviors are out of proportion to the task being requested of them (for example, a violent act over being ask to pick up a toy). They have a lack of sense of a social hierarchy and have been described by others as socially manipulative and having anger management difficulties, which may include growling, grunting, spitting, hissing, violence and/or swearing. They may have a “look” in their eyes that is indescribable and/or scary to the parents(S) and family members.

The word ‘pathological’ is used to describe the avoidance as impairing their ability to function. Avoidance is used in many ways and the strategies are manipulative in a social way to avoid a demand. I have seen children use distraction, a multitude of excuses, stories and/or lies, negotiation and arguing, screaming and biting, hostility, attacking other people and/or becoming violent, running away, hiding, engaging in highly embarrassing activities in public, withdrawing into a fantasy world and acting like animals, just to name a few strategies.

Socially, children with PDA appear to have better or more social skills, however they do not have full empathy. I have observed them use empathy to control and/or manipulate others or a situation, but there is a stark lack of emotion involved. They may use their intellect to manipulate others.

At times, these children can appear as though they are just like any other child and at other times, they can be extremely challenging. These types of children are extremely moody, highly anxious, love role play and pretending, may have sensory sensitivities, tend be be bossy and domineering, and may not realize that they are a child, in the true sense of a little person. Some believe they are animals, rather than human. If you believe your child has PDA, typical parenting or even Autism parenting strategies will NOT usually work.

If you think your child has PDA or traits of PDA please read the following books. I am also available to consult with by emailing me at tania@aspiengirl.com

There are specific assessment tools to assist with diagnosing PDA.

Recommended reading

Duncan M, Healy Z, Fidler R & Christie P (2011). Understanding Pathological Demand Avoidance Syndrome in children. London: Jessica Kingsley Publishers.

Fidler R, Christie P (2015). Can I tell you about Pathological Demand Avoidance Syndrome? London: Jessica Kingsley Publishers.

I had the pleasure of attending one of Dr. Greene’s conferences in North America and I cannot recommend his work enough.

Greene, Ross W. (2014). rec. 5th edition. The Explosive Child: A New Approach for Understanding and Parenting Easily Frustrated, Chronically Inflexible Children

Greene, Ross W. (2014). Lost at School: Why Our Kids with Behavioral Challenges are Falling Through the Cracks and How We Can Help Them

Greene, Ross W., & J. Stuart Ablon (2005). Treating Explosive Kids: The Collaborative Problem-Solving Approach.

 

Sherwin J. A. (2015). My daughter is not naughty. London: Jessica Kingsley Publishers.

Recommended  Resources

Dr. Greenes’ Centre for Collaborative Problem Solving

http://www.ccps.info/

Streaming Video or DVD: Explosive, Noncompliant, Disruptive Aggressive Kids at http://www.cpsconnection.com/store

You don’t have to wait for Dr. Greene to be speaking in your area to watch his one-day overview of the CPS model; you can watch streaming video or download MP4 video or MP3 audio formats.

Recommended Australian Resources

http://www.thepdaresource.com/pages/groups.html

If you know of a professional in Australia who works with PDA, please let me know and I will add them to the ‘PDA Professionals list’, by emailing me at tania@aspiengirl.com

Look for my new book on PDA and females, coming 2016

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Copyright, Tania Marshall, 2014-2016

Myths, barriers and reasons females may be unable to obtain an Autism diagnosis

 

Currently, I am writing two books, “AspienPowers” and “Behind the Mask”. Quite often, as I am writing, certain memories or themes from my years of work come to the forefront of my mind. In my clinic work with individuals who are discussing their history’s or reasons they are seeking a diagnosis, I have come across a variety of barriers (other than cost) to a diagnosis. I also discuss briefly in my second best selling book I am Aspienwoman that other people may not believe the person once they receive a diagnosis.

Briefly, these include:

“My doctor told me I am a professional working woman so I couldn’t possibly have Autism/Aspergers”.

“I was told I have children, am a good mother and am functioning quite well, so why would I want a diagnosis? He refused to refer me”.

“I went in for an assessment and they gave me child assessment forms to fill out. I couldn’t answer most of the questions”.

“The majority of professionals I called said they only work with children”.

“My psychiatrist said I make great eye contact and talk well with him, so I couldn’t have Autism/Aspergers”.

“The local Autism Society had no-one they could recommend who was trained and experienced in working with Autistic females”.

“The professional I went to see said I couldn’t have Aspergers because it is no longer in the DSM5”.

“The professional I see said I only have anxiety, depression and social anxiety which I have had all my life (from birth). I tried to explain the sensory issues, my Irlen Syndrome and my gender fluidity, to no avail”.

“Ï was told I am a professional actress, making money and working and that I did not fit the profile (the male profile) of Autism/Aspergers”.

“I was told I present too well to have Autism/Aspergers. I am a professional model and I love make-up, clothes, fashion design and shoes, but I have always had social problems. I was told because I am well  liked by others that I could not possibly have Autism/Aspergers”.

“I was told by a professional that Autism/Aspergers is a ‘male’ thing”.

“I was told I have Social Communication Disorder and that’s all. I know that’s not all I have, so I am going for a second opinion”.

“I was told I am too social and therefore it’s impossible for me to have Autism”.

“I didn’t/don’t know how to drop my mask (with my psychologist) and only managed to get an anxiety diagnosis”.

“I have spent so much time teaching myself social skills, reading books on social skills, going to drama classes, that no-one believed me until I saved my money up and saw someone who is both a psychologist (and has worked with many females) and an author (writes about females)  for many years”.

“My daughter met two of the 3 criteria on the ADOS but has no RRP’s, so she did not receive a diagnosis”

“They said my daughter has some traits but not enough, so she now has a label of ‘Disruptive Mood Dysregulation Disorder'”

“My daughter is a Jekyll and Hyde and did not receive a diagnosis because she is so well-behaved at school”

To Be Continued…more coming soon

11

For more information of female Autism, please go to:

http://www.aspiengirl.com

http://www.taniamarshall.com

Free webinar The female Autism Conundrum

http://www.autisminpink.net

To contact Tania for fee-based impressions assessment/diagnosis, consultations, media interviews/inquiries, workshops and.or conferences, book reviews, translations, please email Tania at tania@aspiengirl.com

 

Copyright Tania Marshall, 2014-2016